Missy Franklin seeks help for her family and spreads awareness about living organ donation
Missy Franklin Johnson, an Olympic champion swimmer, spent her time around the recent Winter Games learning and spreading awareness about living organ donation. This is a subject that unfortunately affects his family.
Franklin Johnson’s father, Tailand aunt and godmother, Deb, are in end-stage renal failure. This side of the family suffers from genetic polycystic kidney disease. They are both on transplant waiting lists for a cadaver kidney. This wait can take years, so they are also looking for living donors.
dick’s wife, ADwent public on Facebook on January 23, asking if anyone knew anyone who might be interested in becoming a donor.
“Our family is looking for a Hail Mary and needs your help as we are in a race against time,” she wrote.
She then said Dick’s kidney function was at 15%, approaching the point of needing dialysis with noticeable symptoms including extreme fatigue.
“It’s been hell watching my dad go through this,” Franklin Johnson shared on Instagram on February 14, National Organ Donor Day.
Dick said on Friday he was “perpetually tired” with little energy.
“Playing the game of waiting on the edge of dialysis not knowing if I could get a donor kidney this month, this year or never is a source of high anxiety, especially after 2 years of self-imposed exile. in the mountains because of Covid,” he wrote in an email.
Deb said she was grateful to feel good so far, although she was more tired in the evenings.
“The mental anxiety of the unknown has definitely been the hardest adjustment for me at this point,” she wrote in an email. “I feel so defeated for having a genetic disease that I can’t do anything to cure it or put it into remission. The ‘wait and see’ game is especially difficult for me, who is a type A personality. aware and accustomed to finding the solution and not focusing on the problem.”
Before DA went public, family and friends would donate kidneys. Franklin Johnson’s husband, Hayes, was first, but “Dick wouldn’t accept this wonderful offer,” DA said. Others were tested but ultimately weren’t matches.
Since DA’s Facebook post, another 25 potential living donors have registered with the American Transplant Foundation database. Some were found to be incompatible in initial testing, and others require further evaluation.
“There are no exact statistics on the number of matches needed to find a living donor, each case is different and depends on the blood type, age, medical history etc. of a potential transplant recipient. “, Anastasia Henry, executive director of the American Transplant Foundation, wrote in an email. “The general recommendation is: you should keep sharing your story and keep looking for your living donor, your hero, until you find one.”
The family directs anyone interested in learning more about living organ donation to the American Transplant Foundation and its database.
“There are a lot of people who desperately need it,” Franklin Johnson told the NBC Denver affiliate. “It’s a very special thing to do [become a donor]we don’t mean to downplay it at all, but if you feel called to do so, we really encourage people to find out more.
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